Today is WORLD HEARING DAY and I’m spending a little extra time focusing on the hearing Hunter HAS instead of what he is missing.
It’s also the perfect day to share Hunter’s hearing journey and an update on his diagnosis.
Hunter’s hearing journey
December 2016: Hunter had a perfectly normal evaluation from an audiologist. I literally asked, “He’s 100% okay?” And he replied:
September 2017: He fails his hearing screening at school. The district’s audiologist tests his hearing and confirms a mild-moderately severe bilateral hearing loss and prescribes hearing aids.
December 2017: We go back to the first audiologist (because that’s the ONLY one our insurance allows us to see) and he confirms the diagnosis. We inform him of the heavy doses of antibiotics that were given to him while he was hospitalized for his amputation and he assumes that’s what caused the loss.
The bizarre part is that the audiologist either totally fudged the first test, or Hunter went from perfectly normal hearing to a moderate-moderately severe hearing loss in less than one year.
January 2021: His hearing levels have progressively worsened and we start to investigate as to why.
If medicine caused the loss, it is typical for the damage to be done and the loss would most likely hold steady. AND it would/should have been caught in 2016 at his first auditory evaluation.
February 2021: CT Scans show no obvious signs of hearing loss which leads us to the possible conclusion that the loss is caused by genetics. This doesn’t necessarily mean it was inherited. If we really wanted to know, we’d have to spend thousands of dollars on genetic testing, and even then, there are thousands, if not hundreds of thousands of disorders that can lead to hearing loss.
What we do know, is that we may never know the reason why or how and we can’t make any predictions as to how it will progress. I did reach out to someone who is very active within the deaf community and she simply told me: The unknown will be a constant in his life.
Up to this point, we have processed and coped and we will continue to do so. We look forward to connecting more with the hard of hearing and deaf community and we know that even though this is a stumbling block, our lives will be enriched and we will move forward with looking for the good.